Aghahosseini Shima Sadat نويسنده MSc, Postgraduate Student, Department of Nursing, Hematology and Oncology Research Center, Faculty of Nursing and Mid-wifery, Tabriz University of Med Aghahosseini Shima Sadat , Dehghan Nayeri Nahid نويسنده Nursing and Midwifery Care Research Center, School of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran , SHAHSAVARI HOOMAN نويسنده Department of Medical Surgical Nursing, Nursing and Midwifery School, Tehran University of Medical Sciences, Tehran, Iran , Nasiri Tosi Mohsen نويسنده Associated Professor, Liver Transplantation Research
Center, Tehran University of Medical Sciences, Tehran,
Background Since the number of hepatitis patients requiring liver
transplantation is on the rise and the waiting list for such operation
is long, the quality of life of these patients will be affected.
Providing any care and health services requires an understanding of
these patients’ real experience and their specific needs. Objectives
Therefore, this study aimed to explore the life experiences of hepatitis
patients waiting for liver transplantation. Methods This was a
qualitative study with content analysis approach. Participants in this
study consisted of 10 hepatitis patients on the waiting list for liver
transplantation, who were selected through purposive sampling. For data
collection, semi-structured interviews were conducted and data were
analyzed using Landman and Grantham and constant comparison methods.
Results The participants included 10 hepatitis patients with a mean age
of 41.4 years, and 34.8 months average time being on the waiting list.
The main themes of “life turmoil (being troubled for the family and
living with hardship), “searching” (searching for information and search
for a change in treatment approach), spirituality (trust and faith in
God and relaying on Imams (Tavasol)), and “new concerns” (unhappiness in
life and challenge and consequence of waiting) were extracted from the
data. Conclusions Hepatitis patients’ experiences included family
economic problems, exacerbation of the disease and its complications,
lack of adherence to treatment regimen, and physical and psychosocial
problems. Knowing and understanding the issues and problems of these
patients can create positive changes in their time when waiting for
liver transplantation, and can empower them in this difficult time so
they can have a more successful transplantation.